Mission Statement: This blog was created to provide information on getting help for autism in general while focussing on locally available resources for families with newly diagnosed children in Belleville and Quinte area.

Please browse the blog at your leisure. You are welcome to comment on the posts. If you are a parent, an autism consultant, counselor, teacher with information on autism resources available in our area, please email your information to benziesangma@gmail.com. Your information will be added within 24 hours.

Local Autism Support Groups

Parents Engaging Autism Quinte (PEAQ), an autism parent support group, meets once a month on the first Tuesday of the month (no meetings in January, July and August) at Kerry's Place, 189 Victoria Avenue, Belleville at 6:30 to 8 p.m. If you have questions or suggestions for autism topics that are important to you so that we can invite appropriate autism professionals to speak at these meetings. Next PEAQ meeting is on June 5.

Autism parent support group meeting hosted by Mental Health Agency, Trenton and Military Family Resource Centre (MFRC) meeting is on the Second Thursday of the month from 6 to 7:30 p.m. If you have require any further information please contact Marya Peters for more information at 613 392-2811 ext 3953 or email marya.p@trentonmfrc.ca

For info on Community Living Prince Edward County Parent Support group, contact Resource Consultants @ 613 476 6038

Central Hastings Autism Support Group meets in Madoc at the Recreation Centre. Contact Renee O’Hara, Family Resource & Support, 613-966-7413 or Tammy Kavanagh, Family Resource & Support, 613-332-3227

Transition planning for elementary school students with autism

Friday, April 23, 2010

Waiting list getting longer each year?

Sad state of affairs for children with ASD and their families in Ontario, judging by the statistics in this article published on April 2. "The wait for autism services in Ontario is getting worse, and fed-up parents are threatening peaceful civil disobedience to force the government to be accountable to their kids.
There are 1,478 children province-wide waiting for intensive behavioural intervention therapy—a proven strategy that works best in a child’s preschool years. Another 362 kids are waiting for assessments."
Read more at http://www.parentcentral.ca/parent/familyhealth/children'shealth/article/789412--fed-up-parents-push-for-action-on-autism-services
The wait list for government-sponsored Intensive Behavioural Intervention (IBI)therapy seems to grow longer each year in this province. Placed on the list back in Feb. 2009, my six-year-old son still waits and will be waiting for another two years, we're told. So, what do we do while we wait for the service? Are there support services available which would help parents deal take care of their ASD child in the meantime? So far, it's been a year and 2 months since the placement and almost 2 years from the actual diagnosis and so far, no other services has kicked in yet. So, the wait continues for a service that might not even be effective for my son at eight and a half. This, however, does not mean that I have been simply waiting twiddling my thumb. Our family has been pouring so much effort on our own on his intervention both at home and school since his diagnosis in 2008 and I am happy to report that he is today a high-functioning child attending a regular classroom. But he's still a child who needs professional help and the lenght of the waiting period to get that kind of help for him is unbearably and meaninglessly long. I quite understand and emphatize the feeling of the parents cited in this article. I feel tired of it all too!

In it for the long haul...

I created this blog with my sincere wish that those of you reading this will want to share your own stories, both good and bad, what worked for you and what didn't and together, we can make it easier for the next family beginning their own journey of discovery. By posting what you know, where you have recieved certain services, who you have talked to, whose expertise you trust, how you navigated the school education services and by responding to questions in the discussion thread, know that you have helped a family in need. So, parents, experts in the field, counsellors, teachers and everyone who has any information on resources available, please feel free to post on this blog.