Mission Statement: This blog was created to provide information on getting help for autism in general while focussing on locally available resources for families with newly diagnosed children in Belleville and Quinte area.

Please browse the blog at your leisure. You are welcome to comment on the posts. If you are a parent, an autism consultant, counselor, teacher with information on autism resources available in our area, please email your information to benziesangma@gmail.com. Your information will be added within 24 hours.

Local Autism Support Groups

Parents Engaging Autism Quinte (PEAQ), an autism parent support group, meets once a month on the first Tuesday of the month (no meetings in January, July and August) at Kerry's Place, 189 Victoria Avenue, Belleville at 6:30 to 8 p.m. If you have questions or suggestions for autism topics that are important to you please go to our FaceBook account and post your suggestions so that we can invite appropriate autism professionals to speak at these meetings.

Autism parent support group meeting hosted by Mental Health Agency, Trenton and Military Family Resource Centre (MFRC) is on every second Thursday of the month (from September to June) from 6 to 7:30 pm. For more info, please contact Bryanna Best, Special Needs Inclusion Coordinator at 613 392 2811 ext 2076 or email at bryanna.b@trentonmfrc.ca

For info on Community Living Prince Edward County Parent Support group, contact Resource Consultants @ 613 476 6038

Central Hastings Autism Support Group meets in Madoc at the Recreation Centre. Contact Renee O’Hara, Family Resource & Support, 613-966-7413 or Tammy Kavanagh, Family Resource & Support, 613-332-3227

Parenting your child during Covid-19 pandemic

Showing posts with label About autism: family life following diagnosis. Show all posts
Showing posts with label About autism: family life following diagnosis. Show all posts

Tuesday, February 16, 2010

Choosing from myriad of ASD treatment options

"A survey study asked parents about their use of 111 different possible autism treatments. These included many different categories including behavioural or educational therapy, medications, diets, supplements, medical procedures and alternative therapies. Parents (mostly from the US) indicated that they had tried an average of seven treatments for their child (Green, 2006). In choosing to use so many, some parents may be selecting options that have little research evidence to inform them what to expect. The danger here is that in some cases, a treatment may cause unpredicted harm to a child. Alternatively, it may not have as much effect as it is promoted to have and may result in a loss of family resources (time or money), which could be put to better use elsewhere.
One approach to this problem is for parents to review as much information as possible concerning a treatment they are considering for their child. But, this unfortunately, may not be enough... available sources such as the Internet, requires knowledge of how to evaluate levels of evidence...learning how to appraise research knowledge at a more basic level can still be useful." - from article by Stephen Gentles.

Tuesday, February 9, 2010

Life after diagnosis

Raising a child with autism can be physically exhausting and emotionally draining. What you'll need to do include the following:
1. Your child's education and treatment: Your first step will be to find a team of trusted professionals. This group could be a team of teachers and therapists who can help gather information on the options in your area and also be able to explain the federal regulations regarding children with disabilities. This team also needs to include a case manager or service coordinator, who can help access financial services and government programs.
2. Caring for a child with autism can be a round-the-clock job that puts stress on your marriage and your whole family. To avoid burnout,experts say, you'll need to take time out to relax, exercise or enjoy your favorite activities even if it's just watching a movie together after the children go to bed.
3. A support group of other families struggling with the challenges of autism can be very useful. Many communities have support groups for parents and siblings of children with autism. (Belleville has one that meets at Family Space on the evening of the last Monday of the month at 6:15 p.m.)
4. Finally, gather yourself information on the subject so you learn to understand the myths that come with the disorder and to form yourself a strong base for journey ahead.

In it for the long haul...

I created this blog with my sincere wish that those of you reading this will want to share your own stories, both good and bad, what worked for you and what didn't and together, we can make it easier for the next family beginning their own journey of discovery. By posting what you know, where you have recieved certain services, who you have talked to, whose expertise you trust, how you navigated the school education services and by responding to questions in the discussion thread, know that you have helped a family in need. So, parents, experts in the field, counsellors, teachers and everyone who has any information on resources available, please feel free to post on this blog.