Mission Statement: This blog was created to provide information on getting help for autism in general while focussing on locally available resources for families with newly diagnosed children in Belleville and Quinte area.

Please browse the blog at your leisure. You are welcome to comment on the posts. If you are a parent, an autism consultant, counselor, teacher with information on autism resources available in our area, please email your information to benziesangma@gmail.com. Your information will be added within 24 hours.

Local Autism Support Groups

Parents Engaging Autism Quinte (PEAQ), an autism parent support group, meets once a month on the first Tuesday of the month (no meetings in January, July and August) at Kerry's Place, 189 Victoria Avenue, Belleville at 6:30 to 8 p.m. If you have questions or suggestions for autism topics that are important to you please go to our FaceBook account and post your suggestions so that we can invite appropriate autism professionals to speak at these meetings. There won't be any meeting in December but we are taking local families supporting individuals with moderate to severe sensory challenges to the Christmas Event at the Children's Safety Village half an hour prior to the event being opened to the public.

Autism parent support group meeting hosted by Mental Health Agency, Trenton and Military Family Resource Centre (MFRC) meeting is on the Second Thursday of the month from 6 to 7:30 p.m. If you have require any further information please contact Marya Peters for more information at 613 392-2811 ext 3953 or email marya.p@trentonmfrc.ca

For info on Community Living Prince Edward County Parent Support group, contact Resource Consultants @ 613 476 6038

Central Hastings Autism Support Group meets in Madoc at the Recreation Centre. Contact Renee O’Hara, Family Resource & Support, 613-966-7413 or Tammy Kavanagh, Family Resource & Support, 613-332-3227

Strategies for challenging behaviours

Monday, May 9, 2011

What does your gut feeling say?

A young mother at my son's school cornered me last week with a rather embarrassed air about her. She said that she once overheard my conversation with a friend about autism and autism supports at school. She told me that she has been observing odd behaviour patterns in her 3-year-old child. She does not understand what she is seeing in her child who, she's certain “is just not behaving like my other child and I just know that this is something a lot different about him.” But her extended family members (we've heard that story time and time again) think that she is over-reacting to the situation and that “it will all straighten out in the next few years.”
This is where experts' advice about trusting your instincts come in. When there is cause for concern, then the next step, without a doubt, is to get the child assessed by an expert or experts in the field. But, from my personal experience, that too can be tricky. One of the first "experts" we met told me to "wait and see" for another year. He said to me that having my child assessed for autism would be "labeling" him and in his opinion “opening a can of worms”. But I trusted my own instincts and insisted on a referral to see a developmental paediatrician for an assessment. Needless to say, my son got the actual appointment to see the doctor nine months later and that, too, because someone cancelled and he got the spot. He received his evaluation confirming my suspicions and was placed on the waiting list for treatment.
Unfortunately, almost three years later he is still on the said waiting list but that's another story. Meanwhile, following the evaluation report, my husband and I lost no time in getting him locally available, though scarce, supports and services and I am happy to note that my son is making huge progress today.
I suggested to the young mother that she should trust her instincts and go for an evaluation for her son as soon as possible. It's an important first step. Her child's only three and the sooner she takes the first step, the brighter the future of her child will be.

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In it for the long haul...

I created this blog with my sincere wish that those of you reading this will want to share your own stories, both good and bad, what worked for you and what didn't and together, we can make it easier for the next family beginning their own journey of discovery. By posting what you know, where you have recieved certain services, who you have talked to, whose expertise you trust, how you navigated the school education services and by responding to questions in the discussion thread, know that you have helped a family in need. So, parents, experts in the field, counsellors, teachers and everyone who has any information on resources available, please feel free to post on this blog.