Mission Statement: This blog was created to provide information on getting help for autism in general while focussing on locally available resources for families with newly diagnosed children in Belleville and Quinte area.

Please browse the blog at your leisure. You are welcome to comment on the posts. If you are a parent, an autism consultant, counselor, teacher with information on autism resources available in our area, please email your information to benziesangma@gmail.com. Your information will be added within 24 hours.

Local Autism Support Groups

Parents Engaging Autism Quinte (PEAQ), an autism parent support group, meets once a month on the first Tuesday of the month (no meetings in January, July and August) at Kerry's Place, 189 Victoria Avenue, Belleville at 6:30 to 8 p.m. If you have questions or suggestions for autism topics that are important to you please go to our FaceBook account and post your suggestions so that we can invite appropriate autism professionals to speak at these meetings.

Autism parent support group meeting hosted by Mental Health Agency, Trenton and Military Family Resource Centre (MFRC) is on every second Thursday of the month (from September to June) from 6 to 7:30 pm. For more info, please contact Bryanna Best, Special Needs Inclusion Coordinator at 613 392 2811 ext 2076 or email at bryanna.b@trentonmfrc.ca

For info on Community Living Prince Edward County Parent Support group, contact Resource Consultants @ 613 476 6038

Central Hastings Autism Support Group meets in Madoc at the Recreation Centre. Contact Renee O’Hara, Family Resource & Support, 613-966-7413 or Tammy Kavanagh, Family Resource & Support, 613-332-3227

Parenting your child during Covid-19 pandemic

Thursday, March 3, 2011

Misconceptions about Autism Spectrum Disorder

I'd like to say that I am fairly well-informed on the subject of autism. I read books, articles, journals, news of the results of the latest research and I am still amazed at how little I know of the subject of autism and its effects on different individuals. For those who are just venturing out on this journey of discovery, I wish you well and I hope you find the help you are looking for, sooner rather than later. But for those who might not have too much time to do in-depth research of their own and for extended members of families of children newly diagnosed with autism and community members in general, here is a short clarification of some of the misconceptions about Autism Spectrum Disorder.
Autism is not rare. According to the latest statistics from Autism Speaks Canada, it occurs in 1 in 110 children and 1 in out of 70 boys.
Autism is not an emotional disorder. It is a neurological disorder. Read more at this link: http://www.ninds.nih.gov/disorders/autism/detail_autism.htm
Poor parenting skills do not cause autism. When these children are having a melt-down at a shopping mall or a line-up at a grocery store, it's not because the parents have not taken the time to teach that child how to behave in public. The situation could have been triggered by his own (my two cents) sensory (lights, sounds, smell) overstimulation and inability to process his surroundings. Imagine this situation with a non-verbal child with ASD, who won't be able to tell the parent what's bothering him or express his feelings.
Moving on...
Children on the autism spectrum do not outgrow autism. There is no cure for it. With early intervention(on an aside, there are myriad of therapies and approaches to treating autism today but the only government funded treatment option for autism in Canada today is Intensive Behaviour Intervention or IBI) and positive learning support, children with autism can become highly functional.
Autism is a spectrum. Each child presents his/her own unique set of strengths and challenges. If you know one child with autism, you know about the challenges of only that one child.
Children with autism can participate, with different levels of learning supports tailored to that child's needs, in a regular classroom. They do not need to be in a special educational environment exclusive for children with autism.
One reason I found myself writing on this topic is because of a recent conversation with a young mother who told me that she is strongly suspecting her child to be on the spectrum but is being advised by her relatives against seeking a formal medical diagnosis because they believe he will outgrow those challenging behaviours. Life with a child, formally diagnosed or not but exhibiting symptoms of autism is hard as it is both for the immediate family and the child himself or herself without well-meaning relatives attempting to offer advice based on some misconceptions such as the above floating around.

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In it for the long haul...

I created this blog with my sincere wish that those of you reading this will want to share your own stories, both good and bad, what worked for you and what didn't and together, we can make it easier for the next family beginning their own journey of discovery. By posting what you know, where you have recieved certain services, who you have talked to, whose expertise you trust, how you navigated the school education services and by responding to questions in the discussion thread, know that you have helped a family in need. So, parents, experts in the field, counsellors, teachers and everyone who has any information on resources available, please feel free to post on this blog.